Five year old Cadence Ogden of East Royalty, Prince Edward Island was diagnosed at the age of two with a rare genetic disorder called Alpha-1 Antitrypsin Deficiency.  This inherited disorder can cause liver disease.  Cadence’s Alpha-1 Antitrypsin Deficiency has advanced far more quickly than expected.  She is now in liver failure.

Her liver is greatly enlarged and not able to do its’ work.  This makes her tummy swell and causes her pain and discomfort.  She has periodic nose bleeds, nausea and vomiting and she tires more easily.  Her smile though is as big as ever and so is her spirit.

These past three years have been difficult ones for Cadence, her parents Corey and Crystal, and big sister Mariah.  There have been many trips to the QEH and the IWK and most recently to Toronto Sick Kids.  Cadence needs a new liver and is on the transplant list there.  The expected date for the transplant is unknown but could happen at anytime.

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